Table 3 Framework for consumer portal
Categories | Content | To Cover |
|---|---|---|
About Palliative Care | What is palliative care? | Terminal illness Precious time Maximising opportunities in life FAQ |
Who provides palliative care? | Health care team Eg. pastoral care, family as the key unit provider | |
How do you access palliative care? | Self referral GP Hospital physician Community services Specialist PC services | |
When does palliative care begin? | When required | |
When can I ask about pain relief and symptom control? | When do you discuss palliative care and supportive issues? | |
Navigating the Health Care System | Palliative care and the health care system | Feeling abandoned? Move from the acute serviced orientation Home or Hospital ? |
Talking to your doctor | Hints and strategies | |
Talking with other health care professionals | Hints and strategies | |
Complementary therapies | Types Benefits autions | |
Unhappy with the health care system? | Patient rights Avenues for mediation | |
Receiving palliative care | Planning for the time you have | What we know about dealing with a life limiting diagnosis |
Managing your symptoms | Fatigue Frustration Pain Difficulty breathing | |
Managing your life | Living with uncertainty Have your affairs in order | |
What to expect when you are dying | Fears, pain, reaction and behaviours of others | |
Creating your memory | Healing old wounds Leaving a message Giving treasures to be treasured | |
What others have done | Stories & Obituaries | |
Caring for someone receiving palliative care | Being a caregiver | The role/Rights/Support Resources |
Understanding your situation | Physical and psychological demands Personal loss & growth Dealing with different coping strategies Need for a break | |
Creating memories | Events/Diary/Photos The stories of other caregivers | |
Obtain important information | Deciding what is important | |
Physical aspects of caring | Bed comfort/Nutrition Medications/Hygiene | |
Recognising and managing symptoms | Fatigue/Pain Lack of appetite or urinary control | |
Caring for someone who is receiving palliative care cont'd | When death occurs | What to expect when the one you are caring for is dying Letting go What to do when someone dies Caring for the body after death |